How "ists" Can Be Blessings

Our lives the last few years have been filled with visits to A LOT of "ists". What is an "ist" you ask?? Well let me explain. We have in the last four and a half years visited: the dermatologist, optometrist, speech pathologist, occupational therapist, psychologist, psychiatrist, endocrinologist, gastroenterologist, pallate specialist, throat specialist, nutritionist, feeding specialist and yesterday the geneticist...wheeew! Robert and I were sitting in the geneticists office yesterday recounting all of the "ists" and what a journey it has been. A few of the early "ists" were for our daughter Ana who had some skin issues and needed glasses as well as James who definitely needed glasses. But the majority of the "ist" visits have been on a quest to understand and help our sweet son Daniel.

Even before we brought him home from Russia we had a feeling that we would have some medical issues to deal with. We had no idea the scope of what we were in for but we knew that the Lord planned for Daniel to be in our family and so we persevered to get him home. Since then we have pealed back the onion and discovered many things, Daniel has several diagnoses but the one that continues to allude us is what is causing him to still be only 36 pounds at the age of almost nine. We have tried liquid supplements, we have tried increasing his calories and nothing is working. So later this month we will be having a "g" tube or feeding tube put in which will hopefully allow him to absorb nutrients more efficiently and thus allow him to gain weight. However that does not answer the burning question of what is causing all of this in the first place. This is how we wound up at the geneticist's office. We were blessed to find a man who was very kind and spent almost two hours discussing with us Daniel's unique history and also doing a thorough physical exam. One of the kindest things though was that this man talked mostly to Daniel. He engaged him in conversation in part to find out his capabilities but he did it in such a way that Daniel felt important and that we were not just sitting there talking about him but that he was involved. Funny how something that could seem scary and unknown could turn out to be a blessing. God meets us where we are in every situation and pours out blessings. The doctor has some ideas about what might be causing his difficulties but we will have to wait for approval from the insurance company for genetic testing to see if he is correct in his assessment. For now we wait but with a new hope that we might get some answers concerning Daniel's condition.

The next blessing of the day was that my mom and her husband Brad met us there and watched the other children in the waiting room while we were in with the doctor. Being homeschoolers is a blessing in that you can go to appointments when you need to, but it is also challenging to have to have seven people trekking through various doctors offices. We are like a passing parade and it is not always easy. However in this instance it was a blessing. The children got to tell their grandparents all about their recent adventures to Disneyland. The grandparents got to spend time with the grandchildren and we got to focus on the doctor and Daniel. Everyone was blessed!

The final blessing of the day came after we came home last night. I figured after a day in very hot Phoenix going from place to place and doing not so enjoyable things perhaps we should have some fun. So we headed for the YMCA for a little swimming to end our day. While we were there I took Daniel down the water slide as I try to do whenever I'm swimming with them. He has almost drowned in the past coming out the end of the slide because he was too small to stand up. However last night when we went down together I tried to let him go a bit and see how he would do. He did okay so after we had gone down a few times and we were resting a bit he said to me. "Mom when I'm big I'm going to go down that slide by myself!" To which I responded why not try tonight?? He was a bit amazed that I would be so cavalier but he said..."Really??". I spoke with a kind lifeguard and he allowed me to stand at the bottom of the slide to see if he could do it. Well suffice it to say Daniel has learned a new skill! He did just fine and he must have worn out the path up the stairs and down the slide by the time we went home last night. Once again God blessed me with a glimpes of the fact that although Daniel is different from my other children and he is behind in his growth and may always be, he is making progress. God's timing is not our timing and His ways are not our ways but they are the BEST! I'm so thrilled that He chose me to be the mom of this special child and revel in whatever He chooses to do with his life.